Learning About MS and Discovering What Works for Me
When I was first diagnosed with MS, it was already a really crazy time in my life. My wife and I had our first baby a few weeks prior, and things were pretty hectic at home adjusting to parenthood. So adding the fact that I had MS was a bit overwhelming and added an aspect of uncertainty to my life.
However, looking back, it was actually pretty good timing. I had been diagnosed a week before the Annual “Race to Erase MS” Gala, hosted by our family friend, Nancy Davis. So the entire week following my diagnosis was filled with meetings, dinners and conferences with all of the best MS doctors and researchers in the world. Also, I was surrounded by hundreds of people who were advocating to find a cure for the disease, and that truly felt amazing.
I began to learn about various treatments from the top researchers in the field, as well as positive success stories from those affected by the disease. Being immersed in the MS community helped me realize that I am not alone, and it showed me the meaning, and importance, of a support system.
I know I was really fortunate with the timing of my diagnosis and the connections that I have, which is not always the case for most people. But there is a lot of information out there and I started to absorb that information and work towards a better understanding of the disease, how it affects me personally and what works best for me to manage it. Some things that I discovered:
There are no cures yet, so I am a true believer in using everything you can that you feel is helpful, and I find these sites to be great resources with tons of information about MS:
My story webisodes
This online documentary series highlights Jack’s inspiring journey with relapsing-remitting MS — and how he doesn’t let it control his life!
Jack and others share personal reflections on life with RMS in the You Don’t Know Jack About MS® blog.
The resources on this page can help you prepare for visits with your doctor and better understand multiple sclerosis.