A doctor’s arm

Jack’s Blog

Jack’s Relationship With His MS Neurologist

Admittedly, I’m not always the best MS patient in the world when it comes to following doctors’ orders because I don’t always remember to do what is suggested. Like when the doctor says, “Take it easy, figure out what works and doesn’t work for you.” I sometimes forget and do a million things all at once and then find myself falling asleep at my desk in the afternoon. I also often forget about appointments and it usually takes my wife yelling at me before I call the doctor’s office — haha!

That said, I feel like having a good relationship with your neurologist is so important. Feeling comfortable and finding a doctor who worked with my personality helped. I’m not the chattiest when I go to see him but I am trying to be better about it because I know it’s important to have an open conversation about how I’m doing. I fill him in on what’s been going on with me and how I’ve been feeling and we talk about my treatment plan and anything I’ve noticed that seems “off.”

All in all, my visits are usually pretty uneventful, but I do want to be clear about something — I don’t go to see some space-age alien doctor from the planet Gamma Centura. I’m on a normal management plan and see a regular neurologist. I try to eat well, I take my medicine as prescribed, and I like to have as much fun as possible. I know some people out there might think that I’m doing well because I have access to all this extra stuff because of what I do or who I am, but it’s just not the case. I think I’m just incredibly fortunate that I discovered my MS relatively early and went on a treatment plan immediately.

This disease does not discriminate. It does not care who you are or where you come from. But to be perfectly honest, even though I’m doing well, I often go to bed at night waiting for the shoe to drop. I’m not the only one who thinks like that, right? But that is the kind of conversation I have with my doctor. I asked him recently what my chances are of something happening soon. His response is what it always is: “unfortunately there is no way to tell.” That, to me, is what eats me up the most about living with RMS. It’s frustrating, but I try my hardest to not let it hold me back.

My doctor is a huge part of my journey, and I really encourage anyone who is reading who might be new to a diagnosis to find a doctor you can have a good shorthand with. They are going to be your pipeline to getting any answer you might be looking for. Lean on them when you need them. That’s what they are there for.   

Anyhow, have a great day!